Become an Ambassador

Hi l'm Erika (@erikagreenberg_), I am endometriosis warrior and a sepsis survivor. In 2017, I had a fallopian tube abscess that burst.
I went into septic shock and was in the hospital for about two months fighting for my life. I was also diagnosed with endometriosis during that same year. I have dealt with chronic pain and chronic illnesses almost my whole life. I have made it my life's mission to help people who struggle with chronic pain/ illness and spread awareness. Do not forget that you are strong and a warrior.

Hey! I’m Abi, and I’m “medically interesting.” I have several chronic health conditions that have led to me using mobility aids as part of my coping (not passing out in public is nice), but I’m still discovering the extent of my interesting-ness! If you see me online, feel free to reach out and chat; I’m happy to share more about my journey one-on-one.

Law school is a large part of my life right now, and I’m looking forward to making a difference as a lawyer! My hobbies include art, fashion, pop culture, and music (and let’s be honest, lots of YouTube on rough days). Find me and my (mostly thrifted) outfit photos on Instagram @abi.normal_

My name is Jennifer, and I was diagnosed with rheumatoid arthritis 12/12/12 at the age of 32 after a year of doctors and treatments trying to figure out my chronic pain.

I had multiple allergic reactions, one resulting in pustular psoriasis altering my life forever and adding a new lifelong diagnosis. I felt alone and secluded, which spurred the idea to create my IG @Gracefully_Jen, My Spoonie Sisters community and podcast @My_Spoonie_Sisters too! Please join my fellow spoonie sisters, but don’t forget your spoon! 🥄

Hey! My name is Mikayla, I am a FND warrior! When I was diagnosed, I decided to create my page on instagram (@mikayla_and_fnd) to help spread awareness and have my voice heard to help others feel less alone! I have many undiagnosed disorders, but I try to never let my health take over my life. Most of these oddballs have led me to become a regular mobility aid user. I love music and Criminal Minds. I will be going to college to study Psychology.

Hi friends! My name is Alicia, and I was diagnosed with SLE (Lupus) 2 years ago, but have been battling symptoms for approximately 6 years. I recently had to say goodbye to my career in the banking industry as the disease progressed. Although it has been hard coming to terms with my illness, I was able to open my own online clothing boutique, Solmeres Boutique, and work at my own pace while managing my health. I’m grateful for all of the opportunities life has given me, even through the struggles of a chronic illness. Find me on Instagram @alicia___xoxo and @solmeresboutique
Sending lots of love to my fellow spoonies!

My name is Marissa and I’m considered “medically frail”, at least according to my insurance! Over the last 3 years I have been diagnosed with Fibromyalgia, IBS, GERD, Benign Fasciculation Syndrome, Asthma, Chronic Urticaria, Essential Tremor, Chronic Migraine, and Neurocardiogenic Syncope- along with previous diagnoses of Anxiety, Depression, and PTSD. I am primarily a museum worker, but also a preschool ballet teacher, colorguard coach, figure model, and licensed cosmetologist living in Indiana with my partner and two kittens. You can find me on Instagram @_mermaid_mo

Hi! I’m Abbie/Aj. I’m 19 years old and am pursuing a degree in English. I’ve been sick since I was 6. It’s been a crazy ride. We’re still looking for answers but I have POTS and fibromyalgia. I also have a few mental health disorders including Bipolar an PTSD. I’m very passionate about mental and chronic illness awareness and advocacy.

Lexi (@thegeminiadvocate) is a disability advocate living with Neuromyelitis Optica, ADHD, and
depression. She uses her page to spread awareness, educate, and to bring people together to celebrate Disability joy and pride. She will be graduating from Johns Hopkins University with her MSPH this December.

Hi everyone! My name is Geri and I'm a lupus warrior from NYC. I was suffering for months not knowing what was going on with my body.  I was officially diagnosed with (SLE) lupus in July 2017. Lupus has also attacked my kidneys so I also have lupus nephritis. I am a patient advocate for lupus.net where I write articles and moderate. I also recently became an ambassador for the Lupus Foundation of America. It's been over 5 years and each day I'm pushing through and hoping for the best.  You can find me on Instagram @everydaylivinglupus where I share facts about lupus, chronic illness and share glimpses of my life.  

Fun fact: I love all things disney and watching Broadway shows. 

Hi, I’m Elisabeth. I just recently got diagnosed with Fibromyalgia. I haven’t had symptoms for  long either. I was blessed with a husband determined for answers and great doctors. That being said, I am still on this long journey and trying to stay positive through it. I am still learning all the tips and tricks that will work for me. I am literally trying everything. You can follow my journey @fibrowarrior_emm. You also will get glimpses of my fur babies Milly (dog) and JJ (cat). 

My name is Heather. I'm 28 and I have been diagnosed with hESD, gastroparesis, POTS. FND. chronic migraines, and Epilepsy. Im currently studying psychology and fine arts in university.

Amy and Sarah (both they/them) are two spoonies who love to focus their own shop and socials on their lives as chronically ill nonbinary people. Amy has had symptoms as far back as they can remember but was diagnosed with Fibromyalgia and EDS when they were 17. They also have ADHD, OCD, Anxiety, Depression, and Chronic Migraines, as well as some undiagnosed symptoms. Sarah got sick at 15 and is diagnosed with many things, among them POTS and MCAS. They’re both very excited to sport some cute new spoonie merch! You can find them at ScullyStuff on Etsy and @scullys_stuff on Instagram, TikTok, and most other socials!

Hi my name is Kayla (@purplespoonie91) I was diagnosed with Hyperadrenergic POTS in May of 2022. I also have psoriatic arthritis, migraines, fibromyalgia, and chronic fatigue syndrome. I'm working on advocating about these chronic illnesses and showing others it's okay to use mobility aids.